We do not endorse non-Cleveland Clinic products or services Policy Advertising on our site helps support our mission. And don’t miss your chance to connect with bloggers on the #LivingWellChat on March 31 at 7PM ET.Cleveland Clinic is a non-profit academic medical center. For the full schedule of bloggers visit / epilepsy-blog-relay.īe sure to check out the Epilepsy Blog Relay Thunderclap to raise epilepsy awareness. NEXT UP: Be sure to check out the next post tomorrow at for more on Epilepsy Awareness. Read about it, get to know it, and grow WITH it.Īs always, check with your doctor before trying anything new. Technology has come such a long way and continues to grow to help us better manage our lives with epilepsy. I can’t stress enough how knowing your body and taking care of it is so important. I’ve included some screenshots from nights where I was extremely restless and logged seizures the following morning and nights I slept much better and no recorded seizures. This has been my only way to help me discover and control this part of my life with epilepsy. I know there are other devices out there made specifically for seizures and sleep but not everyone can afford them and some are made to monitor grand mal seizures only. ![]() That nap can throw off my sleep schedule so quickly, I just avoid it all together. It doesn’t just happen at night either, this counts for those afternoon naps people enjoy so much.uh not me. You would be surprised the changes you could make just by paying attention. From temperature in my room, pillows, to winding down 30 minutes earlier. Once I saw the problem spots, I was able to make the necessary adjustments. Data From Epilepsy Storylines Sync- Hoursĭata From Epilepsy Storylines Sync- MinutesĪfter paying close attention to the data gathered for a number of weeks, I noticed the nights I was most restless, I would always have a seizure either during that night or the following morning. The data is super easy to read and understand. The data imported there I can share with my neurologist to better treat these things. ![]() I don’t only have to use my FitBit app, I can sync it to my Epilepsy Storylines application on my iPhone as well. In today’s world of technology, we have the ability to sync data across multiple platforms and devices. The unique thing about these fitness wearables is that you are not limited to analyzing data just in one area. When I realized that my seizures were happening in my sleep again, I decided to start monitoring through my FitBit. It could literally be a matter of life or death. For someone living with epilepsy, there is such a thing as too much sleep. I cannot get too little sleep or too much sleep. Folks often laugh or make this weird face when I say I HAVE to get at least 7 hours of sleep a night and no more than 9. One of my many Seizure Triggers is sleep deprivation (see previous blog on seizure triggers here). You can find more information on Nocturnal Seizures here. Lack of sleep, Sleep deprivation, drastically altering your sleep pattern can play major roles in causing these types of seizures. This is common of those who suffer from Temporal Lobe Epilepsy like myself. The majority of nocturnal seizures occur in light sleep – soon after falling asleep, before waking or around awakening. Nocturnal Seizures are seizures that occur exclusively during sleep. These were the seizures I could never figure out how to tame until now. I am not being paid to endorse any products in this blog post, however, they have been a tremendous help in allowing me to take control of my Nocturnal Seizures. I cannot wait to pour out everything I have been holding in over the past few months but first things first. So know that I am always fighting for us even if its not on here. There’s been so much going on, from speaking at conferences to upcoming events all in the name of Epilepsy Awareness. I’ve been away for a while now fighting seizures and other personal matters but never too far away. If this is your first trip to my little corner then welcome. Yes, my lovies I am back gracing the net again. Follow along and add comments to posts that inspire you! This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31.
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